It has been a while but I'll do a quick update for those of you that are still with us..... Radio silence................................

Mikaila continues to give us troubles with her feeds. Each day is a struggle and unlike the previous days. We have yet to see a pattern emerge. One day, she will shun breast feeding. The next, she will fight the bottle yet embrace the breast. Smart girl. We do have a feeding specialist through early intervention that will visit every 4 weeks. She is well intentioned but I'm not sure we have learned anything substantive. We'll keep at it. Her growth has been ok. She gained 5 1/2 ounces in the past week. At this point, anything more than half an ounce per day is acceptable so 5 1/2 ounces in 7 days is pretty good.

We had our second eye exam today for little miss Mikaila. They were looking for development with the blood vessles in the eye. As was the case during her original visit her eyes were perfect. We didn't get any indication of the strength of her vision.

Last week, the folks at Anthem finally came to take away the oxygen canisters and monitor. About freakin time! She had been off of oxygen for months yet we couldn't rid our lives of the monitor. We hope the lack of monitor will eventually translate into more sleep.

We added a few pics and a short video. You will see or should I say hear on the clip that Mikaila is very vocal. Enjoy.

Update

The feeding specialist paid Mikaila a visit mid-week to assess her feeding issues. We have been able to get Mikaila's feeds back into the acceptable range but she still fights us more often than not. My hope was that the specialist (through early intervention, Schenectady County) would arm us with tools and techniques to re-train Mikaila to welcome and enjoy her bottle. The specialist observed Mikaila take a bottle and of course she took it without issue. She did push the nipple out at one point mid-feed but she took it back in after a burp without too much of a fight. This is not typical behavior. We generally have to coax the nipple into her mouth and constantly reassure her along the way. If Kim administers the feed, I have to be at the ready holding Mikaila's hands to avoid her knocking the bottle out of her mouth. I also generally move my mouth as if I were taking a bottle as Mikaila often will mimic what she sees. Back to the specialist. After observing her feed the specialist came to the conclusion that Mikaila's issues are likely not medical. The far more likely cause is an aversion resulting from negative feeding experiences; her formula and milk allergy that led to very uncomfortable reflux and substantial spit ups.

We really didn't get any techniques from the specialist. She did recommend that we change up our patterns. Mikaila often will get upset and sometimes hysterical when we put her in position to eat but before we even introduce the bottle. The specialist mentioned that we might change her position. Also, we have noticed that when Mikaila gets very upset often the only thing that will calm her down is swaddling her. When she gets hysterical she will not eat so we need to be more proactive to avoid her reaching that state. She generally eats without issue when she eats moments after awaking from a nap. We have been using that to our advantage as well and she validated that thesis. The take away is that we have to keep her calm and only introduce the bottle when she is calm.

When Mikaila went to the doctor last, she weighed 9 lbs 9 ounces. Some five days later, she still weighed 9 lbs 9oz. However, her feeds following the doctors visit had been very difficult and at the same time we were trying to get her re-aclimated to breast feeding so her lack of weight gain is not surprising. Two days later she had gained 2 more ounces placing her at 9 lbs 11 ounces on 9/11. Her feeds have gotten better since then so we do expect her to begin gaining weight again. Getting back to her doctor's visit, the doctor wasn't concerned with her weight. The trend was still acceptable so we will continue our current course of pure breast milk. At this point, 1/2 ounce per day is more realistic

I think that is about it. We'll add a few pics in a bit.

Quick Update

We took Mikaila to see Dr. Miller today to get a check on her weight. She has been on breast milk sans formula for two weeks now. Although she posted only moderate gains (she is now 9 lbs 9 oz), the doctor was still pleased with her progress and assuaged our fears related to the reduction in calories. The latest research indicates that developmental vulnerability of very low birth weight babies is far greater pre-due date. Since Mikaila is 2 1/2 months past her due date, this is likely not a concern. Dr. Miller gave us the go ahead to continue her on pure breast milk.

If you will recall, we took her off of the formula for a number of reasons: She was struggling with her feeds often at once showing indications of hunger but not wanting to eat. She also was projectile vomiting several times each day. We eliminated the formula from the mix and eventually added it back. When we did, she showed classic signs of a milk allergy. Yada, Yada, Yada, she went back on pure breast milk and the spit ups virtually stopped.

We have a feeding specialist coming next week to assess Mikaila's problems taking the bottle. She comes next Wednesday. We'll post an update if she is helpful.

I should note that Mikaila decided that she would put a halt to her aversion to breast feeding today taking four feeds directly from the source. We hope this is not merely an anomaly but rather indicative of a trend in the right direction. She hadn't breast fed in over two weeks so this is very good news.

That's about it for now.